We are soaring to new heights to raise money for DEBRA UK, a national charity and patient support group for people living with the rare, and extremely painful, genetic skin blistering condition, Epidermolysis Bullosa, also known as ‘Butterfly Skin’.
To raise money for the life changing services that DEBRA provides, Liv and Abi will be Wing Walking on the 11th of June.
I know what you may be thinking – ‘Wing Walking, what is that?’. Well, it’s a thrilling, and some may say terrifying, stunt which is akin to skydiving, although instead of jumping out of the plane you are strapped to it! Yes, these plucky volunteers will each be mounted atop a plane, to ascend into the sky and soar at speeds of up to 120 mph. Some may say it’s only for the brave hearted, but in this case, Liv and Abi are doing it for the brave hearted people living through the excruciating pain of EB.
DEBRA UK is a pioneering charity that is advocating to stop the pain of EB. As of this year they have launched ‘A Life Free of Pain’ appeal that aims to raise £5m by the end of 2023 and will help to fund the life changing treatments to enable those with EB to live a life free of pain. In addition to their valiant fundraising efforts, DEBRA UK has also set out to raise awareness of this relatively unknown and indiscriminate skin disorder. In the latest YouGov study, only 7% of the UK population were aware of Epidermolysis Bullosa/EB and only 15% aware of DEBRA. And if you, like many of us, were unaware of what EB is or the affect it has, please take a minute to watch the inspiring Isla tell her story below.
It’s hard to watch but its far, far harder to live with, and it is for Isla and the many others living with EB, as well as their families, that we have set ourselves the fundraising goal of £2,000.
The Flight to Fight EB will be taking off on the 11th of June at Headcorn Airfield, Shenley Road, Kent, TN27 9HX – all are welcome to join us.
To help us raise £2,000 for DEBRA, please donate at our Just Giving Page.
Be sure to share your donation on social media to help spread awareness of EB!